aviolentworld Posted March 3, 2015 Share Posted March 3, 2015 That time again. Just got my CF walk information for the Cleveland Zoo on 5/16 and figured it would be a great time to make another thread. Below is a photo from last years walk and a couple others hey guys,my girls have a genetic abnormality called CFTR relatedmetabolic syndrome. They don't have cystic fibrosis, but could haveproblems and develop a milder form of it it in the future. I'm raisingmoney to help find a cure for Cystic FibrosisI'm a CF carrierand gave the gene to my girls. My wife has a tiny typo on her gene thatwhen paired with mine can POSSIBLY cause atypical CF (much mildersymptoms of CF or symptoms at an older age) - lung problems/infections,sinus problems, and pancreas problems and trouble gaining weight due tostickier than normal mucus in their bodies. They have borderlineelevated higher levels of salt in their sweat, but not high enough to beconsidered cystic fibrosis. The girls are monitored by a CF specialistevery 3 months, but so far are doing fantastic. They are happy, healthy,growing, and thriving. Click the link if you would like to know more about CFTR related metabolic syndrome. http://www.cff.org/AboutCF/Testing/Genetics/CRMS/ any donation is greatly appreciated. even if its a couple bucks!!! thanks dudes and dudettes. http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1774452&pg=personal&fr_id=3482 mssskat184, hippielauryn, henster311 and 5 others 8 Quote Link to comment Share on other sites More sharing options...
serious business Posted March 3, 2015 Share Posted March 3, 2015 Do it, this guy is great aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
henster311 Posted March 3, 2015 Share Posted March 3, 2015 as always my man, my best to you and your family! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
batman Posted March 3, 2015 Share Posted March 3, 2015 cheers man aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
+hecollec+or Posted March 3, 2015 Share Posted March 3, 2015 Good luck man. Current charity $ is tied up in AHA, but hopefully I can throw you a little $ next go round. Also, your daughters are adorable! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted March 3, 2015 Author Share Posted March 3, 2015 as always my man, my best to you and your family! cheers man thanks guys. Good luck man. Current charity $ is tied up in AHA, but hopefully I can throw you a little $ next go round. Also, your daughters are adorable! thanks cheeseballz. it's not a bad thing when charity money is tied up. Quote Link to comment Share on other sites More sharing options...
hippielauryn Posted March 3, 2015 Share Posted March 3, 2015 Your girls are the cutest!! Happy to help out! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
abovetheearth Posted March 3, 2015 Share Posted March 3, 2015 Just tossed you a couple bucks. Good luck hitting your goal! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
deafening Posted March 3, 2015 Share Posted March 3, 2015 You're halfway there. aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted March 3, 2015 Author Share Posted March 3, 2015 You're halfway there. Damn you guys are the best. Thanks peeps Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted March 13, 2015 Author Share Posted March 13, 2015 getting ready for the weekend bump. thanks to everyone thus far. much appreciated. Quote Link to comment Share on other sites More sharing options...
somethingvinyl Posted March 17, 2015 Share Posted March 17, 2015 This is either the second or third year I've donated something. Always a worthwhile cause. Those girls are precious! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted March 28, 2015 Author Share Posted March 28, 2015 This is either the second or third year I've donated something. Always a worthwhile cause. Those girls are precious! thanks again man. love the support. it's crazy that alot of you guys have seen my girls grow up..haha Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 1, 2015 Author Share Posted May 1, 2015 just a couple weeks away. Quote Link to comment Share on other sites More sharing options...
ditc586 Posted May 2, 2015 Share Posted May 2, 2015 I'm in aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
Satan Posted May 2, 2015 Share Posted May 2, 2015 couldnt throw in much, but you got the rest of my paypal balance. good luck! aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
ditc586 Posted May 2, 2015 Share Posted May 2, 2015 couldnt throw in much, but you got the rest of my paypal balance. good luck! how much did you throw in? Even though I already donated, I will match yours. In a decent good mood tonight and willing to give PM me the info if you want Satan and aviolentworld 2 Quote Link to comment Share on other sites More sharing options...
Satan Posted May 2, 2015 Share Posted May 2, 2015 how much did you throw in? Even though I already donated, I will match yours. In a decent good mood tonight and willing to give PM me the info if you want thats really fucking awesome of you. Quote Link to comment Share on other sites More sharing options...
rue Posted May 2, 2015 Share Posted May 2, 2015 Threw you a few dollars, every bit helps right? I work on a hospital ward here in the UK for children with Cf, in the last 20yrs there have been such innovations in care, treatment & research, have to believe we're closer to a cure. Walk well my friend aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
controlthebleeding Posted May 2, 2015 Share Posted May 2, 2015 Threw in a little more so you'd hit your goal. aviolentworld 1 Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 3, 2015 Author Share Posted May 3, 2015 I'm in couldnt throw in much, but you got the rest of my paypal balance. good luck! how much did you throw in? Even though I already donated, I will match yours. In a decent good mood tonight and willing to give PM me the info if you want damn you guys are some good dudes. thanks so much. Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 3, 2015 Author Share Posted May 3, 2015 Threw you a few dollars, every bit helps right? I work on a hospital ward here in the UK for children with Cf, in the last 20yrs there have been such innovations in care, treatment & research, have to believe we're closer to a cure. Walk well my friend thanks Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 3, 2015 Author Share Posted May 3, 2015 Threw in a little more so you'd hit your goal. thanks old freind. will hit you up with my facebook so we can keep tabs on each other. Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 10, 2015 Author Share Posted May 10, 2015 6 more days till the walk. Quote Link to comment Share on other sites More sharing options...
aviolentworld Posted May 15, 2015 Author Share Posted May 15, 2015 last day bump. thanks again everyone for your generosity. Quote Link to comment Share on other sites More sharing options...
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