aviolentworld

Friendly reminder for those that want to donate to a great cause.

EDIT - Posting this very late this year.  I bumped the page from last year and updated the info below about my girls and their diagnosis.  I will update their photos when I get a second since the ones below are a bit outdated.  Thanks for taking a look.
 
That time of the year again.  My Family walks at the Cleveland Zoo every year and raises money to help fight this terrible disease.   Scroll down a bit for some info about my girls and learn about CF and what my girls have. 
 
Some pics and newest update below for those that are interested.



Every year our family walks to raise money for the cystic fibrosis foundation. At the age of one, we found out that our twin daughters have a diagnosis called CRMS or CFTR related metabolic syndrome. What is CRMS ---> https://www.cff.org/What-is-CF/Testing/CFTR-Related-Metabolic-Syndrome-CRMS/ They carry one classic mutation and another variable mutation for Cystic fibrosis. Their most recent sweat tests in 2017 revealed that the amount of salt in their sweat was high enough to diagnosis cystic fibrosis. What they haven’t developed at this time is clear cut symptoms, so they’ve remained under the diagnosis CRMS. We are so unbelievably grateful for their health. We luckily do not have any new issues to report this year. The pictures attached are from 2017 when the girls took their last sweat tests and when they learned how to do airway clearance for when they are sick.
What their diagnosis means is still quite unknown to us. They may continue to lead normal lives or they may begin to develop symptoms of atypical CF as they get older. In the meantime though, our eyes have been opened to how absolutely terrible this disease is and we want to help bring a cure to those who are suffering from CF. Your donation can help develop life-saving curative treatments and medications. ANY donation is welcome and VERY appreciated. Thank you!!!
 
 
 
Link to donate below
http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1774452&pg=personal&fr_id=6904
 
 
 

EDIT - Posting this very late this year.  I bumped the page from last year and updated the info below about my girls and their diagnosis.  I will update their photos when I get a second since the ones below are a bit outdated.  Thanks for taking a look.
 
That time of the year again.  My Family walks at the Cleveland Zoo every year and raises money to help fight this terrible disease.   Scroll down a bit for some info about my girls and learn about CF and what my girls have. 
 
Some pics and newest update below for those that are interested.



Every year our family walks to raise money for the cystic fibrosis foundation. At the age of one, we found out that our twin daughters have a diagnosis called CRMS or CFTR related metabolic syndrome. What is CRMS ---> https://www.cff.org/What-is-CF/Testing/CFTR-Related-Metabolic-Syndrome-CRMS/ They carry one classic mutation and another variable mutation for Cystic fibrosis. Their most recent sweat tests in 2017 revealed that the amount of salt in their sweat was high enough to diagnosis cystic fibrosis. What they haven’t developed at this time is clear cut symptoms, so they’ve remained under the diagnosis CRMS. We are so unbelievably grateful for their health. We luckily do not have any new issues to report this year. The pictures attached are from 2017 when the girls took their last sweat tests and when they learned how to do airway clearance for when they are sick.
What their diagnosis means is still quite unknown to us. They may continue to lead normal lives or they may begin to develop symptoms of atypical CF as they get older. In the meantime though, our eyes have been opened to how absolutely terrible this disease is and we want to help bring a cure to those who are suffering from CF. Your donation can help develop life-saving curative treatments and medications. ANY donation is welcome and VERY appreciated. Thank you!!!
 
 
 
Link to donate below
http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1774452&pg=personal&fr_id=6904
 
 
 

YES, announcement made today, check it:
https://www.20buckspin.com/blogs/news/foreseen-grave-danger-lp-will-release-via-20-buck-spin-on-april-17th-2017

got a special someone to buy for??

WORLD SERIES BABY! WINDIANS! Time for a beer.

This fucking Indians team is damn fun to watch.  Can't wait to see what they do in Toronto.  

Thrash anyone?
The new Bat record just went up for sale. CD & download have been available for awhile but vinyl just went up.
There's 111 picture discs, a black, a clear & a white variant. I think the clear & white are like 500 each or some shit.
http://shop-hellsheadbangers.com/bat-wings-of-chains-vinyl.asp
 
 

WWWWWWWWWWWWWWindians. 

WWWWWWWWWWWWWWindians. 

Man I wish I could be home to enjoy this.  

Fuck yes mother fucker.  Go Cavs.  #allin

what the fuck is a dub???

can it be fucking 9 o clock already.  i actually don't work tomorrow, so i will be able to watch the whole game.  another plus is that its on local tv which means i don't have to watch from my computer..haha.
 
GO CAVS

can it be fucking 9 o clock already.  i actually don't work tomorrow, so i will be able to watch the whole game.  another plus is that its on local tv which means i don't have to watch from my computer..haha.
 
GO CAVS

I've been pleasantly surprised at how well this works. I'll typically sandwich the LP between two pieces of glass and then stack books.

A few days to a few weeks is often enough to get you playing again.

is OKC a better match up?  i'm a cleveland fan but don't pay attention to actual matchups.  it seems like the way OKC is playing i wouldn't want to face them either.
 
 

That would be my dream scenario!

I love that the Cavs are winning these series early, but I need me some Cavs basketball.  Seems like it's been a month since they played.

damn this is awesome with your donation and my neighbors i am at my goal of 200 dollars.  now lets crush this thing.  thanks again
 
edit.  just checked and my team has raised 435 dollars so far.  hoping to reach a K by walk time

thanks brother.

Done. Can't do a lot but I wanted to help.

damn this is awesome with your donation and my neighbors i am at my goal of 200 dollars.  now lets crush this thing.  thanks again
 
edit.  just checked and my team has raised 435 dollars so far.  hoping to reach a K by walk time

Donated!!! Awesome cause!

done