VinylGyroid

Your mom.

That time again. Just got my CF walk information for the Cleveland Zoo on 5/14 and figured it would be a great time to make yet another thread. Below is a photo from last years walk and a couple others.   Also put in some info about my girls the past year.  thanks for taking some time to read through the thread.
 





 
Update from my wife's CF page. 
 
Every year, our family walks to support the Cystic Fibrosis Foundation.   Before the age of 1, our twin daughters were diagnosed with CFTR-related metabolic syndrome (CRMS).  What is CRMS ---> http://www.cff.org/aboutcf/testing/genetics/crms/ They do not have cystic fibrosis.  They have one CF causing genetic mutation and 1 variant mutation that when paired together may cause mild cystic fibrosis in the future... (breathing or gastrointestinal issues caused by thicker mucus in thier bodies). 
Reagan and Alexis saw their pulmonologist in August.  At that time, their first lung function test showed some changes, despite another year of minimal symptoms.  We spent many meetings discussing and deciding a course of action.  The girls visits were increased to every 6 months.   In the meantime, a nasty respiratory virus had them coughing for weeks.
In August we were also given updated sweat testing results as we were somehow given only Alexis' results in 2014 and not Reagan's.   Those diagnosed with CF have levels that are higher than 60.  Healthy individuals score less than 30.  Reagan scored 61 and 52.  Alexis scored 49 and 51.  
 
Their pulmonary testing in January continued to show mild changes (similar to those in August), but confirmed.  The girls will probably be having CT scans this coming summer of either the sinuses or lungs.   If either show signs of cystic fibrosis, our pulmonologist has discussed giving the diagnosis of atypical CF and starting lung treatments. 
 
They are having no stomach issues or weight problems at this time.
 
Our children's diagnosis has opened our eyes to the devastating effects of this terrible disease and we want to help bring a cure to those who are suffering from this illness.  Your donation can help develop life saving curative treatments and medications.   ANY donation is welcome and VERY appreciated.  Thank you!!!
 
 
Click the link if you would like to know more about CFTR related metabolic syndrome.
http://www.cff.org/A.../Genetics/CRMS/
 
any donation is greatly appreciated. even if its a couple bucks!!! thanks dudes and dudettes.
http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1774452&pg=personal&fr_id=4805

Daredevil hype.

Yeah, Holly on the show died already.

Hi I searched the web and every record store in San Jose and some neighboring cities but can't seem to find what I'm looking for. If anyone knows where to find these or finds them I would be willing to buy them from you, and would be very grateful.
 
Gorillaz - The singles collection 2001 - 2011
Gorillaz - Demon Days
The Used - Lies for the liars
The Used - Artwork
Kid Cudi - Man on the moon the end of day

Back to the Future 2 Score | Mondo, Electric Splatter
Back to the Future 3 Score | Mondo, Electric Splatter
David Bowie - Tonight
Jurassic World Score |Mondo, Green W/ blue stripe
Gorillaz - Plastic Beach

PM'd.

Spoiler tags aren't needed for guesses....and if you have read a book that is 3 years old then don't cry spoiler.
In case you don't care about any of this...Soilent Green is People.

Just read the comics. Seems a little daunting at first because there are so many issues, but once you are caught up you only have to read like 20 pages every 2-3 months. Plus the comic is better than the show.

Oh they do. And it's incredible.
So happy hearing all the love for this game. Making me want to play it again .

To the right person, a lot, honestly. When I was in search of that one my girlfriend at the time found it for me for close to $90 USD. 

I finished the first episode this morning and it was absolutely fantastic. I haven't been this enamored by a story, which is very Donnie Darko esque in the best way in my opinion, or as in love with fictional characters in a video game since the first season of Telltale's The Walking Dead. The game is gorgeous visually as well, lots of really great cinematic shots that remind me of Kingdom Hearts (also by Square Enix) which is one of my favorite series of all time. The facial recognition and dialogue motioning can be off at times but that's a small thing to point out considering how well the characters are acted and how perfectly everything else was executed just in the first episode. This is the best video game purchase I've made in a very long time and I purchased Black Ops 3 and Fallout 4 + both of their season passes on launch day.
I can't shake the feeling that things are about to get very dark and depressing though, I'm nervous to continue.

Enjoy it! That game fucks with your head in the best way possible when you have to make decisions.

$16 ppd, steal.

Wait since when has it been customary for the seller to make the PM? If you want to buy it, you should make the inquiry, no?

Two replies and you still didn't read the OP? Oh ok.

I blame his Crosley

Was surfing IG and came across this webstore's profile. Pretty interesting.
http://www.recrayssunglasses.com/sunglasses

Just who are exactly the "real fans"? I've watched since day 1 and will personally be bummed if Daryl bites it.

Hahaha that's so great.

I think the PayPal dispute window increased to like 6 months some time last year.

PayPal dispute might be an issue since it's more than 45 days after purchase, but good luck!

He's gonna get caught up in even more shit if he starts eBaying variants that were never even released. ETR style but even sketchier since these were paid for by preorders then not delivered.

The thing about that is...
I simply don't believe they would put so much effort into that story just to kill her off before it comes to fruition, therefor her plot armor keeps her safe I think. I think Tara sealed her fate when she told Denise she loved her and Denise said she'd say it back when she came back from her two weeks run with Heath. I specifically think she'll take the comic death of another character, one Kirkman regrets giving to the character who got it in the comics. It's an important death that doesn't necessarily have to go to a big character as it's just a means of introducing (or in this case reintroducing) a character from Negan's group.
As for Lucille... it's tricky because no matter what they do there will be people who are disappointed. Glenn and Daryl are both equally as predictable right now but it's vital to the story (at least in the comics -- they could approach it differently, I just hope it's done well if they do) that Glenn gets that death as it's what ultimately plays into what I wrote above in the spoiler tags. The death of Daryl would be more for shock value and selling the whole "nobody is safe" Game Of Thrones-esque aesthetic they've been trying to hit us with for years.
Story vs. Shock -- I love Glenn and I think he should get his iconic death, it's a crucial part of not only his story but everyone else's and how it effects each of them. With that said though, I think Daryl's character has gotten stale and I want to see all of the teeny bopper Daryl fans ("Kill Daryl and we'll riot!!!!!1") cry so the real fans can watch the show in peace.
...but of course I could be entirely wrong, this is just my two cents. I think Glenn and Daryl are the only reasonable candidates for the death. A lot of people think it should go to Morgan but I really don't believe he deserves it, he's not important enough and wouldn't provide the shock value or the effect that death needs to have on the characters for the story to progress. I guess the death could go to Carol but I believe her story is FAR from over and as one of the best actress/actors on the show/best character on the show (again, just my opinion) I think it would be a real shame to see her go so soon.

Asian Man Records has the PO up for the new Dowsing LP. 500 each on black and black/white. There's also a bundle available.
http://asianmanrecords.storenvy.com/collections/234988-new-releases/products/1143802-dowsing-lp